ME/CFS 2022

Raising Awareness Action

On Thursday, September 8th 2022, our community will come together for a special 24- hour online fundraiser called San Diego Gives. ME/CFS San Diego is thrilled to take part in this local day of giving. Can you help us reach our $2000 goal before Thursday 9/8 at midnight? Because of you, we have been able to donate over 5,500 ME/CFS-themed masks with priority to local health care workers and are working on several different ways of raising awareness, improving medical access and services for ME/CFS patients and educating healthcare workers. Please ensure this important work can continue for days and years to come, by donating online.


ME/CFS San Diego's San Diego Gives Page


The power of community cannot be underestimated. Thank you for your continued generosity and support!

ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. ME/CFS San Diego volunteers and supporters have been working hard to produce, package and distribute ME/CFS-themed swag. Our 2022 Awareness Action goal is to distribute our ME/CFS-themed swag and informational flyers to healthcare organizations, healthcare educational institutions, healthcare researchers and providers, legislators, public health, disability support organizations and potential patients to improve awareness of and education about ME/CFS in order to improve services and medical access for ME/CFS patients. We started distributing our swag bags in May 2022 to celebrate ME/CFS International Awareness Day as well as ME/CFS Awareness month but this is an ongoing event as we try to reach as many people.

"Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by post-exertional malaise (a reduction in functioning and a severe worsening of symptoms after even minimal exertion). It causes dysregulation of the immune, nervous, and energy metabolism systems. It is often triggered in susceptible people after viral infections." (https://www.meaction.net/about/what-is-me/) Currently, there are no cures or medical therapies to treat ME/CFS and only about 5% of people ever recover.

Current estimates are that a possible 1 in 10 COVID patients might develop ME/CFS potentially doubling the number of ME/CFS patients.

Resources

Please consider donating to help us provide ME/CFS Awareness- themed PPE with priority for healthcare workers.