ME/CFS San Diego is now a 501c3 public charity!
Some ME/CFS Clinical Trials Lists (Please note: some of these may have questionable study directions including potentially harmful CBT-based or GET-based ones. Also some trial may be registered on more than one list):
DRKS - Deutsches Register Klinischer Studien: https://drks.de/search/en (you need to put in search term)
EU Clinical Trials Research Register: https://www.clinicaltrialsregister.eu/ctr-search/search?query=ME%2FCFS (alternate cfs/me search term https://www.clinicaltrialsregister.eu/ctr-search/search?query=cfs%2Fme)
ISRCTN - UK's Clinical Study Registry https://www.isrctn.com/search?q=me%2Fcfs&searchType=advancedME/CFS Research Foundation (International): https://mrr.mecfs-research.org/en/researchtypes/XaNwcwSZRdSzo3V0E5fkFQ
U.S. Clinical Trials .gov: https://clinicaltrials.gov/search?cond=me%2Fcfs
World Health Organization International Clinical Trials Registry Platform (ICTRP): https://trialsearch.who.int/ <- this has primary and partner registries globally!
Patient Registries/BioBanks:
Emerge Australia AusME registry: https://ausmeregistry.org/
Charité – Universitätsmedizin Berlin Cross-Age Clinical ME/CFS Registry (MECFS-R): https://cfc.charite.de/en/clinical_research/mecfs_registrybiobank (registry and biobank)
CureME UK ME/CFS Biobank (UKMEB) is: https://cureme.lshtm.ac.uk/(registry and biobank)
DecodeME: Participant Recruitment currently closed.
Dutch ME/CFS Cohort and Biobank Consortium (NMCB): https://nmcb.eu/en/patient-cohort/
ME/CFS Biobank Austria: https://www.meduniwien.ac.at/web/forschung/projekte/computer-based-clustering-of-chronic-fatigue-syndrome-patients/me/cfs-biobank-austria/ (registry and biobank)
OMF Study ME: https://www.omf.ngo/studyme/
Solve ME/CFS You+ME: https://youandmeregistry.com/