ME/CFS Websites

  • The Bateman Horne Center: Empowering Patients, Advancing Research, and Improving Clinical Care for all those impacted by ME/CFS and Fibromyalgia

  • CDC on ME/CFS : The U.S. Center for Disease Control and Prevention (CDC) official ME/CFS page

  • HowToGetOn: A self-advocacy guide for anyone who is homebound or bedbound in the US. Special focus on folks with Myalgic Encephalomyelitis (sometimes called “Chronic Fatigue Syndrome”). If you are not lucky enough to have ME or CFS, you are still welcome to use this guide. Enjoy!

  • Education of Children with ME/CFS by Faith Newton: Advice about managing education of students with ME/CFS.

  • MEAction: Our movement fights for recognition, education, and research so that one day, all people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome will have access to compassionate, effective care. MEAction PDF Diagnosis & management of myalgic encephalomyelitis

  • ME/CFS San Diego Facebook group: ME/CFS San Diego members are patients and/or caregivers sharing information, support each other, and advocating for education and awareness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). We mostly connect through the linked facebook group.

  • ME/CFS San Diego Supporters Facebook group: ME/CFS San Diego Supporter members are a community of supporters trying to help raise ME/CFS awareness and change the world for ME/CFS patients.

  • ME/CFS San Diego Facebook page: The ME/CFS San Diego page provides information about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), ME/CFS advocacy, and ME/CFS support . Follow us on Facebook to learn more.

  • ME-Pedia: MEpedia is a project founded by MEAction, powered by the patient community, and built by volunteers including patients, students, and researchers. We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases.

  • NIH on ME/CFS : The U.S. National Institutes of Health (NIH) official ME/CFS page

  • The Open Medicine Foundation: Open Medicine Foundation (OMF) envisions improved health care for patients suffering from chronic complex diseases with collaboration between the patients, clinicians, and researchers.

  • Health Rising: Health Rising is dedicated to providing timely, accurate information to people with chronic fatigue syndrome (ME/CFS) and fibromyalgia.

  • SolveCFS: Solve M.E. is a non-profit disease organization that works to accelerate the discovery of safe and effective treatments, strives for an aggressive expansion of funding for research that will lead to a cure and seeks to engage the entire ME/CFS community in research, advocacy, and patient support.