Thoughts About ME/CFS

Thoughts About ME/CFS is a ME/CFS San Diego page where patients, family, friends, advocates, researchers, doctors, caregivers and/or supporters, basically, almost anyone can express their thoughts about all things related to ME/CFS. To add your thoughts, please email mecfs.SanDiego@gmail.com

On 9/19/2022, one of ME/CFS San Diego's Board Members, Chrisanna participated in MEAction's Millions Missing September Action in Washington D.C.

What did I do today??

Wonderful people, everyone checking on everyone and resting encouraged.

No one got arrested when they took additional action even blocking a street - the police blocked roads on a perimeter around and directed traffic around… and were super nice about it.

My daughter and I stood across the street from the human road block (see their other posts) (organizers knew we were ready to step in to help others w anything) - one law officer who appeared to be the team lead of Secret Service on bikes (he’d asked a portion of us a block back if we wanted them to block the street for us…?!!) that trailed the group and often checked in on people - he asked my daughter who was near to him if the protestors not leaving hr crosswalk wanted to be arrested and she gave the answer we knew to be true ”Yes!”

He said he was again calling DC Metro police again, giving them a headcount and wheelchair count. Alas, DC police maintained the road blocks we realized were in place (extremely few cars came down a section of 17th…) and definitely helped keep people safe but ultimately arresting and transporting sick people, some in wheelchairs, wasn’t likely a good look plus more trouble than usual. They were extremely polite, said it was one of the better protests to have worked, and at the end wished a good day.

It was a hot day - 87 feels like 89, humidity only 48 but that pesky dew point was 62. I’ve been asleep for hours since, just ate some dinner and took extra supplements that hopefully boost my recovery so I can go on to other things I have to do her this week.

Picked up a new hashtag and slogan #StillSickStillFighting 15 years for me.

#MEAction #MEAwareness